Beating Back the Lupus Wolf

Tonight, as I sit here writing this post, I am overwhelmed with gratitude.

Just a few short months ago, our 13 year old daughter was seriously ill. One day, she couldn’t walk. She was severely fatigued. She had a mysterious

fever that came and went without warning. She complained of severe pain. The joints on her hands would swell up, then the next day the swelling would be gone. Her appetite decreased, and she lost weight. Our active daughter became disinterested in everything.

We persisted with the doctor, and more blood work was done. The early diagnosis looked like Lupus. Her blood work, especially , her ANA and her double strand DNA were stratospherically off-the-charts. She was immediately admitted to the hospital. Her hemoglobin and white blood cell counts were so low, she was just one point from a blood transfusion. Her C-reactive protein levels (CRP) were 30 times higher than normal.   When she met her rheumatologist he examined her and said, “You don’t act as sick as your tests say you should be.” She was treated for 5 days.  As soon as she got home, we followed the protocol the doctor prescribed and I started her on a full beyond organic supplement program.  She is a champ and follows her protocol every day. (You can learn more about our introduction to Lupus here)

At her one week follow up, the doctor was surprised at how much better she looked, and released her to do any activity she wished.

At her 6 week follow up, her blood work showed nearly normal blood work and NO inflammation. Except for occasional fatigue and hair loss, she had no other Lupus symptoms. Her doctor was encouraged and noted how well she looked.

At her 4 month follow up the doctor was SHOCKED. Her blood work was PERFECT. (The ANA and double strand DNA was not tested again). I asked  her doctor, “Were the results good for someone on immunosuppressants?”

The Rheumatologist said, “no, it’s really good.”

Me: “You mean good for a ‘normal person’”?

Rheumatologist: “Yes”.

She has no Lupus symptoms except for post flare hair loss and difficulty sleeping( from the prednisone ).  She can tolerate the sun. She beat back a virus in the same time as the rest of the family members who caught the virus. (This is unusual for Lupus patients. A simple illness can be more severe and set off a Lupus flare). She had no pain, no fatigue, no rashes, no swelling of the joints, no involvement of her major organs (at the 4 year mark – biospsy revealed some kidney involvement but NO kidney disease.  Nephrologist was very pleased).

We were able to step down the steroids to a lower dose. (Update – She has been off prednisone for over two years – no inflammation!)  She is still on the Plaquenil and the mycophenolate (CellCept).  Still, the doctor did not expect to see these kinds of results! He couldn’t stop talking about how good she looked.

Our goal with her supplement program was five- fold:

1) Strengthen her immune system so that it would function properly
2) Lower the inflammation
3) Protect her organs
4) Protect her body from the side effects of the drugs
5) Support her gut. Steroids can create leaky gut

Is her Lupus (SLE) cured? No, she still has the antibodies. Using an integrative approach has helped our daughter achieve results far greater than a pharmaceutical approach alone. Given that Lupus (SLE) is a lifelong disease, it is critical that we employ every tool that we can. My husband and I do not want to merely manage her symptoms and keep the disease quiet. We respect her physician’s knowledge, but we know that traditional medicine has its limits. We do not want to use a medication until she can no longer tolerate it, or it causes cancer or kidney disease, only to use another medication with a different set of side effects. We want the best lifelong health possible.

We use only from my wellness partner company.  They are the only company that has over 100 clinical studies and papers published on its finished products.  That checks for over 350 contaminants to the parts per billion level.  That uses whole complex forms.  They are products that are far superior in quality and purity to other brands out there, bar none. These products were instrumental in my recovery from life defining allergies.  In our family, we simply do not trust any other brand.

If you are coping with autoimmune disease, I hope you find this encouraging. I strongly believe that an integrative approach to chronic health problems offers the best hope and quality of life.  Please post your comments or questions below.  To learn more about the products we used, please create a free account at Your Wellness Project. Enjoy hundreds of articles, free classes, and resources!

Feel free to message me through this site ( use the Messenger button) if you have questions or would like to talk.  I do not know where her health would be now if we had not used these products as part of supporting her.  We are soooo grateful!